A Lesson From Lily
Given a choice, I would
prefer to be named Ronda Peace instead of Ronda Jean.
By nature, I am a bona-fide pleaser and
dyed-in-the-wool caregiver. I like tranquility, not
tumult. I most assuredly do NOT like
conflict. In my youth, I took extreme measures to avoid
clashes making me an inviting target for stronger,
controlling personalities. I managed to get myself into
some very unpleasant dilemmas because I did not know
how to set healthy boundaries.
On my
march toward the seasoned years of my life, I have
resolved to master the skill of setting boundaries.
Between you and me, I like doing that about as much I
enjoy a root canal, or giving unmedicated birth.
Sometimes it takes a decided act of my will.
Which
brings us to Lilly*, one of my many favorite residents
at Sunrise at Pinehurst. She gave me a crash course in
the proper setting of boundaries. She also introduced
me to an uncomfortable internal dilemma which I
wrestled with greatly. I've set a rather high standard
for myself in relation to relationships. Is it
possible, I wondered, to set boundaries while at the
same time living out that standard?
Not
that I'm always 100% successful, but I try to be a
safe person, and to honor, uplift and love those I
interact with on a daily basis - my family, my friends,
my co-workers, my residents. Lilly challenged my
"try to" every single day. She knew exactly
which of my buttons to push.
Different people respond
differently to the progression of Alzheimers. Lilly
took on the demeanor of a five-star General whose
orders had been contested. She became increasingly
cantankerous. Though no bigger than a minute, Lilly had
a will of iron and a mulish streak a mile wide. She
would fold her little arms and dare you to take her on.
Retreat did not exist in her vocabulary. Challenging
her ensured a battle. Choosing not to challenge her
meant that anyone in close proximity suffered.
Moderating the skirmish sometimes fell to me. It was a
lose - lose situation in my mind. Either way somebody
was going to be unhappy.
I
tried to strike a balance, to pick and choose my
battles with Lilly. Some days I had to step back, take
a breather and pray hard - really, really hard - for
patience. When she took ownership of the popcorn, there
was no turning back. This one I had to win. That
mêlée stretched on day after day, no end in sight.
"No, Ms. Lilly, you can't keep all of the popcorn
for yourself. It's for everyone." "No, Ms.
Lilly, you can't restrict when and how many bags of
popcorn are taken." "No, Ms. Lilly, you
can't talk like that. It's not kind." "No,
Ms. Lilly, you can't use your hands to bag the
popcorn."
Some
evenings, after a particularly rough day, I logged out
for the evening with a heavy heart. There was no joy
for me in setting boundaries with Lilly. I felt that in
doing so I was violating my standard for relationships.
It did not feel loving at all.
After
she was transferred to the Reminiscence Neighborhood, I
realized just how much a part of my life she had
become. I truly missed her - battles and all. I hoped
that when her memory was fluid, she would remember the
good times instead of the bad.
Sunrise at Pinehurst has
one of the best memory care neighborhoods around.
MaryAnn and her dedicated caregivers have created a
home for those suffering from dementia and Alzheimers
disease that is the finest around bar none. Their sole
purpose is to create pleasurable days for those in
their care. The atmosphere this phenomenal team has set
for their beloved residents is fun, calming and
designed with their best interests at heart. They
diligently care for their charges 24-7.
Nevertheless, the
transition was a rough one for Lilly. She was unable to
accept the rapid changes coming at her. She wasn't the
only one hurting, her daughter struggled, too. She
would have done anything to spare her mom the unwanted
journey she was on, but there was nothing she could do.
It ripped at her very being. She knew how much I loved
her mom, so from time to time she would stop by the
front desk with an update. Most times I could say
nothing more than, "I'm so sorry," and fold
her in my arms.
As
Alzheimers progresses, there are increasingly difficult
challenges to face. In time, it became evident that
Lilly needed a level of care MaryAnn and her amazing
team were not equipped to offer. The day she was taken
out by ambulance was a low spot for me. I wanted to cry
as I watched the paramedics wheel her from the
elevator.
She
looked so tiny in contrast to the full-size gurney they
had her on. Her petite frame sat upright; her little
white-haired head peeped over the blankets the
paramedics had tucked snuggly around her - as much to
keep her from bolting as to keep her warm. I knew it
would be the last time I would see her, ever. Did she
remember me? Had I made a difference in her life? More
importantly, did she know how much I loved her?
My
mind flashed through the events of the previous months.
To be sure, there had been lots of hugs and pats and
oooo's and ahhh's over her color-by-number artwork.
The day she sat at my desk and let me calm her by
rubbing lotion into her hands was a sweet memory. But
interspersed throughout were recollections of the
necessary scoldings, the no's, the boundaries I'd had
to set with her. A myriad of emotions flooded my heart.
This boundary setting is not all it's chalked
up to be.
The
paramedics wheeled Lilly toward the front desk enroute
to the front entrance. Once even with the desk she had
a moment of clarity. She turned, holding my eyes with
her own. For a brief second there was no one else but
Lilly and me. My heart broke under the burden of
"what-ifs" and "I should haves."
Then she turned away addressing the paramedic at her
side.
She
spoke just six simple words, the last I'll ever hear
from her lips. But in the speaking, she told me that
everything was all right between us. Her words washed
over me like a healing balm, wrapping me close and
holding me tight. In that instant, everything she had
unwittingly taught me came into focus. I finally
understood that it is possible, even necessary, to have
healthy boundaries if one is to be a safe person who
honors, uplifts and loves.
What
were those six simple, life-changing
words?
"She's the one who
loves me."
Thank you Lilly for
touching my life. You challenged me daily, forcing me
to wrestle with an important concept I needed to learn.
I'll never forget the lesson you taught me.
I'll never forget you.
* not her real
name